Internationale Versorgungsforschung


Veröffentlichungen in begutachteten Fachzeitschriften

  • Schiffmann I, Freund M, Vettorazzi E, Stellmann J-P, Heyer-Borchelt S, D’Hooghe M, Häußler V, Rahn AC, Heesen C (2020) Assessing the effect of an evidence-based patient online educational tool for people with multiple sclerosis called UMIMS—understanding magnetic resonance imaging in multiple sclerosis: study protocol for a double-blind, randomized controlled trial. Trials 21, 1008 (2020).
  • Alegiani AC, Rahn AC, Steckelberg A, Thomalla G, Heesen C, Köpke S (2020) Quality of Stroke Patient Information Applied in Randomized Controlled Trials—Literature Review. Frontiers in Neurology 2020; 11. Systematic Review. DOI: 10.3389/fneur.2020.526515.
  • Rahn AC, Riemann-Lorenz K, Alegiani A, Pust GEA, van de Roemer A, Schmitz L, Vettorazzi E, Köpke S, Heesen C.  (2020) Comprehension of confidence intervals in audio-visual patient information materials for people with multiple sclerosis (COCO-MS): A web-based randomised controlled, parallel group trial. Patient Educ Couns. 2020 Sep 29:S0738-3991(20)30533-4. doi: 10.1016/j.pec.2020.09.035. 
  • Pust GEA, Dettmers C, Randerath J, Rahn AC, Heesen C, Schmidt R, Gold SM. Fatigue in Multiple Sclerosis Is Associated With Childhood Adversities. Front Psychiatry. 2020 Aug 28;11:811. doi: 10.3389/fpsyt.2020.00811. 
  • Nasseri NN, Ghezelbash E,  Zhai Y, Patra S, Riemann-Lorenz K,  Heesen C, Rahn AC, Stellmann J-P (2020) Feasibility of a smartphone app to enhance physical activity in progressive MS: a pilot randomized controlled pilot trial over three months. doi: 10.7717/peerj.9303
  • Pust GEA, Untiedt B, Weierstall-Pust R, Randerath J, Barabasch A, Rahn AC, Heesen C (2020) Medication beliefs in first-line and second-line treated multiple sclerosis patients. Mult Scler Relat Disord. 2020;42:102144. doi:10.1016/j.msard.2020.102144.
  • Solari A, Giordano A, Sastre-Garriga J, Köpke S, Rahn AC, Kleiter I, Aleksovska K, Battaglia MA, Bay J, Copetti M, Drulovic J, Kooij L, Mens J, Meza Murillo ER, Milanov I, Milo R, Pekmezovic T, Vosburgh J, Silber E, Veronese S, Patti F, Voltz R, Oliver D, guideline task force. (2020) EAN 35 Guideline on Palliative Care of People With Severe, Progressive Multiple Sclerosis. Eur J Neurol. 2020 May 29. doi: 10.1111/ene.14248.
  • Pust GEA, Untiedt B, Randerath J, Barabasch A, Köpke S, Rahn AC, Hansen H, Heesen C (2020) Exploring Adherence to First-Line and Second-Line Immunotherapies in Multiple Sclerosis: An Interview Study. Int. J. MS Care 0000.
  • Jull J, Köpke S, Boland L, Coulter A, Dunn S, Graham ID, Hutton B, Kasper J, Kienlin SM, Légaré F, Lewis KB, Lyddiatt A, Osaka W, Rader T, Rahn AC, Rutherford C, Smith M, Stacey D (2019) Decision coaching for people making healthcare decisions. Cochrane Database SystRev, CD013385 
  • Solari et al, The ManTra Project (2019) Conversion to Secondary Progressive Multiple Sclerosis: Patient Awareness and Needs. Results From an Online Survey in Italy and Germany. Front Neurol, 2019 Aug 22;10:916. doi: 10.3389/fneur.2019.00916. eCollection 201.
  • Alegiani AC, Albrecht S, Rahn AC, Köpke S, Thomalla G, Heesen C (2019) Reasons for delayed admission after stroke: results of a qualitative and quantitative survey. Patient Prefer Adherence,13:739-747. 
  • Engels K, Schiffmann I, Weierstall R, Rahn AC, Daubmann A, Pust G, Chard D, Lukas C, Scheiderbauer J, Stellmann JP, Heesen C  (2019) Emotions towards magnetic resonance imaging in people with multiple sclerosis. Acta Neurologica Scandinavica, doi: 10.1111/ane.13082 
  • Köpke S, Giordano A, Veronese S, Rahn AC, Kleiter I, Basedow-Rajwich B, et al. (2019) Patient and caregiver involvement in the formulation of guideline questions: findings from the European Academy of Neurology guideline on palliative care of people with severe multiple sclerosis. European Journal of Neurology, 26(1):41-50.  
  • Rahn AC, Köpke S, Stellmann JS, Schiffmann I, Lukas C, Chard D, Heesen C (2018) Magnetic resonance imaging as a prognostic disability marker in clinically isolated syndrome: A systematic review. Acta Neurologica Scandinavica, 139:18-32. 
  • Köpke S, Solari A, Rahn A, Khan F, Heesen C, Giordano A (2018). Information provision for people with multiple sclerosis. Cochrane Database Syst Rev, 10: CD008757.  
  • Heesen C, Rahn AC (2018) Guest Editorial: Shared Decision Making in Managing Multiple Sclerosis: Revisiting the Research Agenda, International Journal of MS Care, 20(6) v-vi.
  • Giordano A, Liethmann K, Köpke S, Pöttgen J, Rahn AC, Drulovic J, Beckmann Y, Sastre-Garriga J, Galea I, Heerings M, Jongen PJ, Vettorazzi E, Solari A, Heesen C (2018) Risk knowledge of people with relapsing-remitting multiple sclerosis - Results of an international survey. PLoS One, 13, e0208004. 
  • Rahn AC, Köpke S, Backhus I, Kasper J, Anger K, Untiedt B, Alegiani A, Kleiter I, Mühlhauser I, Heesen C (2018) Nurse-led immunotreatment DEcision Coaching In people with Multiple Sclerosis (DECIMS) – feasibility testing, pilot randomised controlled trial and mixed methods process evaluation. International Journal of Nursing Studies, 78:26-36. 
  • Buhse S, Rahn AC, Bock M, Mühlhauser I (2018) 'Causal interpretation of correlational studies - Analysis of medical news on the website of the official journal for German physicians', PLoS One, 13: e0196833.
  • Heesen C, Pöttgen J, Rahn AC, Liethmann K, Kasper J, Vahter L, Drulovic J, van Nunen A, Wilkie D, Beckmann Y, Paul F, Köpke S, Giordano A, Solari A; AutoMS-group (2017) What should a person with relapsing-remitting multiple sclerosis know? - Focus group and survey data of a risk knowledge questionnaire (RIKNO 2.0). Mult Scler Relat Disord, 18:186-195 
  • Kasper J, van de Roemer A, Pöttgen J, Rahn A, Backhus I, Bay Y, Köpke S, Heesen C (2017) A new graphical format to communicate treatment effects to patients-A web-based randomized controlled trial. Health Expectations, 20(4): 797-804. 
  • Köpke S, Kasper J, Flachenecker P, Meißner H, Brandt A, Hauptmann B, Bender G, Backhus I, Rahn AC, Pöttgen J, Vettorazzi E, Heesen C. (2016) Patient education programme on immunotherapy in multiple sclerosis (PEPIMS): A controlled rater-blinded study. Clinical Rehabilitation, 31(2): 250–61.
  • Rahn AC, Backhus I, Fuest F, Riemann-Lorenz K, Köpke S, van de Roemer A, Mühlhauser I, Heesen C (2016) Comprehension of confidence intervals - development and piloting of patient information materials for people with multiple sclerosis: qualitative study and pilot randomised controlled trial. BMC Medical Informatics and Decision Making, 16, 122. 
  • Heesen C, Kasper J, Fischer K, Köpke S, Rahn A, Backhus I, Pöttgen J, Vahter L, Drulovic J, van Nunen A, Beckmann Y, Liethmann K, Giordano A, Fulcher G, Solari A. (2015) Risk Knowledge in Relapsing Multiple Sclerosis (RIKNO 1.0)--Development of an Outcome Instrument for Educational Interventions. PLoS One. 10(10):e0138364. 
  • Brand J, Köpke S, Kasper J, Rahn A, Backhus I, Pöttgen J, Stellmann JP, Siemonsen S, Heesen C (2014) Magnetic Resonance Imaging in Multiple Sclerosis - Patients' Experiences, Information Interests and Responses to an Education Programme. PLoS One, 9, e113252. 

Beiträge in Fachzeitschriften ohne Begutachtungsverfahren

  • Kasper J, Eiring Ø, Rahn AC, Heesen C, Kienlin S (2016) Samvalgsveiledning gitt av sykepleiere for å involvere pasienter med multippel sklerose i beslutninger om immunterapi. Om BestPractice, November 18.


  • Heesen C, Rahn A, Schiffmann I (2019): Arzt-Patienten Beziehung in der Neurologie. In: U. K. Zettl und J. P. Sieb (Hg.): Diagnostik und Therapie neurologischer Erkrankungen – State of the Art. Publikation in Vorbereitung. 2. Aufl. München: Elsevier. ​​​​​​​
(Stand: 09.06.2021)